The study reveals the risk factors for COVID-19 for people with IDD


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A study of about 550 adults with intellectual and developmental disabilities who received residential services in New York City found that age, older residential settings, Down syndrome, and chronic kidney disease were the factors most common risk factors for the diagnosis of COVID-19 and that heart disease was the most associated. with deaths from COVID-19.

The study, “Risk Factors Associated with COVID-19 Outcomes Among People with Intellectual and Developmental Disabilities Receiving Residential Services,” was published on June 8 by JAMA network open and provided the first evidence of the leading to the diagnosis and death of COVID-19 among people with IDD who receive residential services.

The study’s findings suggest that the risk factors for the diagnosis and mortality of COVID-19 for people with IDD receiving residential services are similar to the general population. It also provided further evidence of an increased risk of severe COVID-19 outcomes in people with Down syndrome.

“The results of this study reinforce the UK’s first findings on increased risk for people with Down syndrome during the pandemic,” said researcher Scott Landes. “While scientists will take a long time to fully discern the reasons for this increased risk, it is imperative that people with Down syndrome, their families, caregivers and medical providers be fully aware of this trend and take all necessary precautions during this time. “

The researchers also found that, similarly to the residential population, an increase in the number of IDD residents living in a group home was associated with more severe COVID-19 outcomes.

“We are in a place in the United States where access to COVID-19 vaccines is universal,” Landes said. “While this will help alleviate some of the spread of the virus, it is necessary to continue monitoring and testing, especially in crowded environments, such as group homes.

“However, unlike nursing homes, group homes for people with IDD have not always been provided with the resources needed to conduct routine COVID-19 testing for residents and staff,” Landes added. . “This is unacceptable. The results of this study indicate that all U.S. states should ensure that collective homes receive the same level of protection as nursing homes or other congregated care centers.” .

The study’s research team includes Landes, an associate professor of sociology and an associate professor at the Institute for Aging Studies at the Maxwell School of Citizenship and Public Affairs at Syracuse University; Dra. Margaret Turk, Distinguished Professor of Physical Medicine and Rehabilitation at SUNY Upstate Medical Center in Syracuse, New York; Marco Damiani, CEO of AHRC in New York; Philip Proctor, Enterprise Technology Strategy, AHRC New York; and Sarah Baier, licensed clinical social worker, AHRC New York.

The researchers posed themselves by asking what individual and residential characteristics were associated with COVID-19 outcomes for people with IDD who receive residential services. They tracked COVID-19 results for 543 people with IDD receiving support and residential services from the New York AHRC in the city’s five municipalities from March 1 to October 1. of 2020.

The researchers found that, like the general population, people with IDD who were older and / or had pre-existing health conditions were more likely to be diagnosed and die from COVID-19. Chronic kidney disease and COPD were associated with an increased risk of being diagnosed; heart disease and cancer were associated of death.

Researchers say all of these risk factors point to the long-term need to provide sufficient funding for IDD services.

“If we want to ensure the best health and quality of life outcomes for people with IDD, it is imperative that states do not cut funding for IDD services,” Landes said. “In fact, the pandemic has underscored the critical need to increase our commitment to the services of people with IDD, including ensuring public health priorities for people with IDD, training health care staff on how to provide quality care to people with IDD and increase pay for care staff. ”

In the United States, the COVID-19 mortality rate is higher for those with IDD

More information:
Scott D. Landes et al, Risk Factors Associated with COVID-19 Outcomes Among People with Intellectual and Developmental Disabilities Receiving Residential Services, JAMA network open (2021). DOI: 10.1001 / jamanetworkopen.2021.12862

Citation: Study Reveals COVID-19 Risk Factors for Those with IDD (2021, June 14) Retrieved June 15, 2021 at -idd.html

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