Dr Nicola Byrne says data initiatives need to prove they are trustworthy

A VPN is an essential component of IT security, whether you’re just starting a business or are already up and running. Most business interactions and transactions happen online and VPN


The National Data Guardian (NDG) for Health and Social Care has told the Digital Health Rewired audience that data initiatives and organizations must ensure that they are able to demonstrate what they are doing with the information is ‘actually trustworthy’.

Dr. Nicola Byrne, who was appointed as the NDG in March 2021spoke at the event at the Business Design Center on March 15 about issues surrounding trust when it comes to health data and more specifically, how this trust is maintained.

“How do we maintain trust? I think the overriding point I want to make is that it is not simply about being legally compliant, it is not enough for any data initiative or organization to say, ‘well we met our legal obligations’, ”she told the AI ​​and Data Stage .

“Meeting legal obligations is obviously necessary but insufficient in condition to build public trust.

“More needs to be done to establish what you are doing with data is actually trustworthy.”

She added: “It is incredibly important for organizations and data initiatives, whether you’re a healthcare trust or you’re building an app, are you telling people enough information about what you are doing with your data, will they be surprised about how you are going to use it.

“And that comes onto the importance of engagement and communication, the one thing to avoid I think is a ‘nothing to see’ ‘don’t worry about it, trust us, it’s fine’.

“Nothing breeds suspicion more when you are told not to worry about something as we all know.”

Lessons learned from GPDPR

Dr. Byrne, who is the second person to take up the role of NDG following Dame Fiona Caldicott, who passed away in February 2021, also spoke about the GP Data for Planning and Research (GPDPR) program.

GPDPR is a primary care data collection service which would see planners and researchers being given more secure access to a more comprehensive set of pseudonymised patient information. Originally planned to go live from 1 July 2021, concerns were raised about the program and eventually led to the implementation date being moved to September. This date was later scrapped and instead data collection will now only begin once certain criteria have been met.

Dr. Byrne told the audience that there were two main learning points to takeaway from the program.

She said: “One is that, with hindsight, there was insufficient engagement with both the public and professionals about what the program was trying to do, but also there was not enough understanding about what mattered to people, what people wanted to know, what concerns they might have about it, what safeguards might need to be in place for both the public and professionals to feel confident about it.

“And I think the second important point about that program is the fact that it showed that trust is context specific and during the pandemic, we all know public data literacy and understanding has increased exponentially.

“The public get the importance of data for the use of research, how data is used to make the vaccine program possible but that doesn’t mean that from now on the public will simply trust everything the government or health and care want to do with data. ”


Taking place on March 15-16 at the Business Design Center in London, Digital Health Rewired 2022 is a conference and exhibition which brings together all parts of the digital health community to celebrate the best of digital, data and innovation in health and care.

Health and care professionals will be able to network, collaborate and learn in person during two days of educational conference sessions, exhibitions and meetings, all focused on sharing best practice and innovation.

All the conference sessions will be CPD accredited.

While online registrations are now closed, you can still register at the door.





Source link

TheHealthReporter

TheHealthReporter

Recent Posts

Enhance your Cisco HIMSS24 experience
The Cisco Customer Experience Healthcare Practice helps customers leverage the use of Cisco technology...
Read More
HIMSS 2024 Find out before you go
The future of healthcare is coming into focus! Now more than ever, we believe that technology is a critical...
Read More
How GLP-1 Drug Success Is Transforming Healthcare Revenue: Is Your Organization Ready?
The huge revenue opportunity arising from the recent success of GLP-1 drugs is not just for pharmaceutical...
Read More

Related Posts